A Conceptual Framework and Key Research Questions in Educational Needs of Blood and Marrow Transplantation Patients, Caregivers, and Families Article

Full Text via DOI: 10.1016/j.bbmt.2019.02.017 PMID: 30796997 Web of Science: 000477092400018
Industry Collaboration International Collaboration

Cited authors

  • Schoemans, Helene M.; Finn, Laura; Foster, Jackie; Roche-Green, Alva; Bevans, Margaret; Kullberg, Susan; Lee, Everett; Sargeant, Cindy; Schatz, Barry A.; Scheeler, Kristin; Shaw, Bronwen E.; Shereck, Evan; Murphy, Elizabeth A.; Burns, Linda J.; Schmit-Pokorny, Kim


  • Patient, caregiver, and family education and support was 1 of 6 key areas of interest identified by the National Marrow Donor Program/Be The Match 2-year project to prioritize patient-centered outcomes research (PCOR) goals for the blood and marrow transplantation (BMT) community. PCOR focuses on research to help patients and their caregivers make informed decisions about health care. Therefore, each area of interest was assigned to a working group with broad representation, including patients, caregivers, and clinicians. Each working group was charged with identifying gaps in knowledge and making priority recommendations for critical research to fill those gaps. The report from this working group presents a conceptual framework to address gaps in knowledge regarding patient and caregiver education in BMT and recommendations for priority research questions on this topic. (C) 2019 Published by Elsevier Inc. on behalf of American Society for Blood and Marrow Transplantation.


Publication date

  • 2019


International Standard Serial Number (ISSN)

  • 1083-8791

Start page

  • 1416

End page

  • 1423


  • 25


  • 7